Information Sheet

Attitudes to Release of Information in Open-Identity Donor Programs

Your participation in this study is entirely voluntary and anonymous.

Please read this information sheet before taking part in this study.

Why are we doing this study?

Whether donor conceived children should be informed of their method of conception, and how much information about the donor should be released to the child are questions that are still continually debated. Parents, donors and offspring may all have different interests and views on these issues.

Historically conception involving sperm, egg and embryo donation has remained secretive and donors were almost always anonymous with few donor conceived children being told of the manner of their conception. However, in recent years an increasing number of countries/states (Sweden, Netherlands, UK, States of Victoria and Western Australia) have legislated for open-identity donor systems where children born of gamete or embryo donation can access identifying information about their donor on reaching maturity.

The purpose of this study is to identify attitudes of donors, recipients and donor conceived offspring to the issues surrounding the release of information about a child's origin. We aim to identify what information is important to each party (donors, recipients and offspring). The findings from this study will help guide clinic practice in donor programs across Australia.

Who is carrying out this study?

This study is being conducted jointly by researchers at Concept Fertility Centre at King Edward Memorial Hospital and the School of Anatomy & Human Biology at The University of Western Australia.

Who will be asked to participate in this study?

Current sperm, egg and embryo donors; recipients of donated sperm, eggs or embryos; donor conceived offspring. Please note that donor conceived offspring must be at least 12 years of age to participate.

What will participants be asked to do?

Should you agree to take part in this study, you will be invited to complete an anonymous online questionnaire which will take approximately 15 minutes of your time.

Please be assured that this survey is not linked to any identifying information about you.

If you are the parent of a donor conceived child (aged over 12 years and less than 18 years) and you consent for your child to participate in the study please log your child into the questionnaire. Please let your child complete the questionnaire independently.

A paper version of the questionnaire can also be provided on request by calling reception at Concept Fertility Centre on (08) 9382 2388 and leaving your postal or email address. Please note this information will not be retained and will be used only to send you the questionnaire.

What will be done with the information?

The information obtained from this questionnaire will be kept confidential and only used for the purpose of this project. Responses from all participants will grouped and analysed together rather than individually. The information that you provide may be published in scientific journals but your anonymity will be preserved at all times.

If you would like any more information about this study, please do not hesitate to contact Dr Peter Burton at Concept Fertility Centre 9382 2388.


Participation statement

By proceeding to do the survey you acknowledge:

Please select the relevent survey if you wish to participate.

1.RecipientClick Here
2.DonorClick Here
3.OffspringClick Here